199 - August 11, 2010 1:22 am

Name:

Private

Location:

Private

Comments:

View private message (Admin only).

198 - August 9, 2010 3:50 pm

Name:

Mike

Location:

Netherlands

Comments:

My dad passed away may 16th 2010 due the cause of gbm4.
No Surgery, No radiation, no chemo but he/we did a treatment with dendritic cells and hyperthermy in germany wich really has a good result so far. This doktor have really good results with cancer treatments and heals people. (contact me for info infoA/Tmikezwetsloot.nl )

june 09: nothing to see on a preventiv scan
22 jan 10: mri big gbm4
did nothing in meantime
26 feb: start dendritic cells/hyperthemy
15 april: mri little growth but less then should be. dokter tells us train almost stopped

Sadly 4 months after the diagnose my dad get a long infection wich caussed a painless end.

so what i wanna say is there are new technique's wich increase the survival time, heal temporary and some survive complete. There is hope i think!

197 - May 29, 2010 9:55 am

Name:

Krystal Hanson

Location:

Carter Lake, IA

Comments:

My husband was diagnosed with glioblastoma multiforme on May 10, 2010 and we begin radiation/chemotherapy on June 3, 2010 at The Nebraska Medical Center in Omaha, NE. I have not found a support group yet and would like to have correspondence with anyone who has been through what we're about to go through so I'll have an idea of what to expect. My email address is: krystalsconfections@cox.net

Thank you!

196 - March 10, 2010 4:05 am

Name:

Kim Leigh

Location:

Sydney Australia

Comments:

Sorry to hear about your father my husband was diagnosed on the 18th of March 2009 he has had chemo and radiation and he was great for 11 months but now he now has lost his speech and not able to walk wthout assistance I feel we are in the last few weeks of his life I will miss him we have been together for 39years I cannot imagine mu life without him this is a terrible cancer that they should be doing more research into. My thoughts are with everyone who has a member of their family with the same cancer as my husband.

195 - August 19, 2009 10:51 am

Name:

Lisa Sandlin

Location:

Gadsden, AL

Comments:

Cindy, Bobbi, Staci, Leighton and Emmaline,
I came across Stan's web blog and started reading all the things people had wrote - truly amazing. I didn't know Staci had set one up. Great idea! He was truly a special person loved by all and dearly missed. Knowing Alabama football season is just around the corner makes me think of Stan so much - "ROLL TIDE"! Just wanted to let you all know that I think of you all often.

194 - July 4, 2009 11:37 pm

Name:

Nicki

Location:

Comments:

I came across your site trying to find information on what to look for and to do in the final stages. My husband was diagnosed in Dec. 2008. We did radiation and Temodar. He could not have surgery because it is on the wrong side of the brain. The tumor is in with the communication, speech and memory. It is very hard to see someone who was an estimator-very organized, detailed person forget the mames of grandchildren, kids and many other things. I found your web site very informative. Thank you for all of the work that you have done. My prayers are for you and everyone else in this situation.

193 - May 18, 2009 11:26 pm

Name:

marcia Haney

Location:

OH

Comments:

I guess in a way I have been blessed, My sister has brain cancer. Glioma. Its been 11 years. She had 4 surgeries, gamma knife, chemo. She had epolapsy since she was 6 years old. her 1st surgery removed the epolepsy, but not the root of the cancer. every 2 years it came back. Its back now in the middle of her head. No more surgery. In less than 2 weeks its doubled in size. Eventhough iit doubled, she was still ok. A new chemo was started, (not sure the name but it starts with Av) Its not working. she is losing her ability to function, Not sure what is left, but she is a fighter that got delt a crappy hand all her life as far as health. The rest of her life was semi-fulfilling. I reall think there is more that can be found to cure this. 11 years surviving this battle is great.
She is 48 years old and I hope and pray for another 11 years, but its not looking good. God bless all of you.

192 - April 17, 2009 10:50 am

Name:

Fern White

Location:

West Hills

Comments:

I am terribly sorry for the loss of your father..
God bless him and let him be out of pain. I have lost both my parents now..
my cousin has just got into a hostipal in Los Angeles with this tumor in his brain.. so I am praying for hinm

191 - March 27, 2009 11:04 pm

Name:

Cathy's big sister Candy

Location:

California & Arizona

Comments:

I check Stan's site often. We followed him and hoped with you all and mourned for him when he lost the fight. My sister, at age 48, also left us 2 years ago this month from GBM. As long as there's hope, we hope - and when our personal fight is done, we keep hold of that hope for other GBM battlers, and we keep each other's losses in hearts and minds. It's a strange fellowship, and one I wish we didn't have to share, but I've never found more caring people than I have through the past 4 years.
Thanks again for keeping your dad's site up, and for sharing his life with us.

190 - February 25, 2009 10:49 am

Name:

Private

Location:

Private

Comments:

View private message (Admin only).

189 - February 14, 2009 1:58 pm

Name:

Gail Coleman

Location:

Deerfield Beach, Fl.

Comments:

I am so sorry for the loss of your father. I lost my Mother to gbm (I can't even use capital letters, so great is my hatred of this disease) on May 25, 2001 at 8:35 p.m. and was also holding her hand. She was my best friend. She was only 60 years old & fought so hard to beat this monster. Please let them find a cure - it is such a cruel disease, robbing a person of everything, including their dignity.

188 - February 13, 2009 9:52 pm

Name:

Shirley Reynolds

Location:

Seattle

Comments:

My sister was diagnosed with GBM mid January 2009. She has had the surgery and is starting chemo (Temodar) tomorrow, Valentine's Day. Radiation starts next week. Thank you for your beautiful book of memories. Stan looked like a great guy. I'm so sorry for your loss.

187 - January 20, 2009 11:46 am

Name:

Kerri Friedman

Location:

St. Louis, MO

Comments:

I found your page while creating a memorial website for my mom. I lost her to GBM on January 29, 2007. I just want to say that I'm sorry for your loss, I feel for anyone going through this terrifying disease and I miss my mom!

186 - January 7, 2009 4:55 pm

Name:

Bella Cullen

Location:

Forks, Washington

Comments:

OMDOUBLEG!! I LOVE EDWARD CULLEN SOO MUCH!!!

185 - December 31, 2008 8:49 am

Name:

marybethcook

Location:

salem Mo

Comments:

i am looking for help

184 - November 28, 2008 11:17 am

Name:

Cindy Wymer

Location:

Pittsburgh, PA

Comments:

I found your site while researching GBM. My 80 year old mother was diagnosed a few weeks ago with this ugly monster of a disease. Hard to believe just a couple months ago she was a vibrant, totally self sufficient lady. She underwent tumor resection and is now begining radiation and temodor.She has lost all use of her right arm, speech is slurred and must walk with a cane now.I see her failing more each day. Her prognosis is grim at best- 6 mths with the above. We have left all treatment up to her. She has decicided on the radiation etc. I'm not sure if she will ever comlete the treatment... My heart goes out to anyone who is touched by this beast.

183 - November 19, 2008 8:50 pm

Name:

shirley horvath

Location:

paunesville, ohio

Comments:

My dad has a gbm stage 4. We found out in july of 05. He has had surgery, radiation and chemo. He's been in and out of the hospital in the past year with differant infections. Right now he is in a rehab unit were I work, for PT. Things have gotten much worse and I fear that this is the end. We were told 3 years ago he had 6 mos. My prayers go out to all who have been touched by this cancer. We too are looking into hospice.

182 - November 17, 2008 11:03 am

Name:

Nikki

Location:

KY

Comments:

Thank you so much for posting this webpage. My boyfriends mother was Diagnosed with a GBM in July of 2007. She had surgery to remove it on July 23,2007. THey implanted a Chemotherapy wafer at the site of the tumor. THey were able to remove a little over 90% of the tumor and that souded promising. She started on a seven weeke regimen of Radiation therapy and after taht she has been taking Chemotherpy IV every two weeks and at times she takes Chemotherapy in the pill form. SHe had been recieving all her care at St Thomas in Nashville but they recently started sending her to Duke Universtiy. This week she went back to Duke for another MRI and treatement and the MRI revealed that the tumor has grown. She seems to be declining and stays very confused all of the time. SHe is 59 years old and her son is only 22 and he is trying to get through school with all of this going on. I will keep you all in my prayers and ask you to do the same for us. If anyone could shed some light on what they think we should expect next that would be so kind. Thank you and God bless you all.

181 - November 11, 2008 6:17 pm

Name:

Deborah Diaz

Location:

San Pedro, CA

Comments:

To Stan's Family -

My employer of 34 years has just been diagnosed with brain cancer. I came across Stan's page, and read your touching story.

I just wanted to reach out and say God Bless Always. I am sorry that you lost dear Stan, a husband and father.

Respectfully,

Deborah

180 - October 26, 2008 12:36 pm

Name:

Private

Location:

Private

Comments:

View private message (Admin only).

179 - October 25, 2008 6:38 am

Name:

OWERRI

Location:

newberg Or.

Comments:

this is an intresting site.

178 - September 21, 2008 3:46 pm

Name:

RACHELbLACK

Location:

KEY WEST, FLORIDA

Comments:

My father passed away of Glioblastoma Mulitforme Aug 17th 2006. My thoughts and prayers are with you

177 - September 8, 2008 12:34 pm

Name:

Althea

Location:

Los Alamitos, ca

Comments:

My Mother also had GBM, she survived 2 years and 3 months after she was first diagnosed. We decided to fight aggressively, until the last year. The Doctors said that there was nothing we can do and focus on pallative care. We decided to pursue Hospice at home. This was perfect for us, because we were still able to care for her primarily and the Nurses would come several times a week as well. My mom passed peacefully with family around her. She really didnt experience much pain. I pray that your family stays strong.

176 - August 24, 2008 10:38 pm

Name:

John

Location:

Belleville, MI

Comments:

I never knew your fahter, but I know you well. My dad is in the last stages of the tumor (Gliobalstoma-after 3 years) and I know about all the issues you dealt with during experimental treatment.

I imagine you know what I wil be through - even if I dont yet. I can't imagine -He is my hero!

I am concerned for my mom, she is the sole care giver. Any hint on how this will work out? I need some direction.

We are thinking Hospice, but maybe a Home if he does not qualify for hospice-----mom cant do it any more....
Can you give me any clue on what to expect.

If you have information, please let me knoe@ leroyteacher@yahoo.com or call me at 734-231-4610

Thank you for your time and I am sorry about your loss,

John Leroy

175 - July 29, 2008 5:27 pm

Name:

Linda Martin

Location:

Comments:

My sister was told in January of this year she too has a glioblastoma. She turned sixty this week. I am sorry for your loss and would like to know what signs to look for during the last days. Thank you and again, I'm sorry for the loss of your dear loved one.

174 - July 24, 2008 4:13 pm

Name:

Private

Location:

Private

Comments:

View private message (Admin only).

173 - July 14, 2008 7:26 pm

Name:

angie pixton

Location:

augusta ga

Comments:

My dad has just been diagnosed. He is in rehab and doing well but he has not started treatment yet. I will be going to join him at his home in vegas to help. I kinda of feel like all I can do is be there by his side. By reading about GBM it does not give much hope for survival. Thank you for sharing your story and very sorry for your loss. If you have any information that would give my dad some hope or ease, please let me know. Sincerely ANGIE

172 - June 24, 2008 7:55 pm

Name:

Laura Guthrie

Location:

Chesterfield, Michigan

Comments:

Hi,
I am sorry to hear about your loss. I too lost someone dear to me, my husband just passed away June 13, 2008 after he struggled to fight the GBM tumor. He was 52 years old and I miss him and Love him so much! He was diagnosed last Nov 2007 after he became ill for 3 days in Oct 19, 2007. Then the following week he had surgery a day after our 4th wedding anniversary on Oct 25, 2007. I hope and pray that someday someone will find a cure for cancer and that no one has to go through what they did. I took care of my husband at home and worked in a nursing home part time, up until he was diagnosed terminal. I know that Chuck is at peace in Heaven and someday I will join him. Feel free to write me an e-mail. I am so sad, I feel like my whole world has been turned upside down. God Bless you , Sincerely Laura Guthrie

171 - June 21, 2008 7:03 am

Name:

darla mullin

Location:

Pittsburgh, pa

Comments:

So sorry to hear of your loss. Myhusband was diagnosed december of 07. He has been through chemo, radiation. Now he is getting incontineent. Hard to walk, Has gained so much weight from decadron. He is in his 6th month. He could not have tumor removed. He has stage 4. This is such a terrible disease.

170 - June 20, 2008 12:18 pm

Name:

Manjit Bansal

Location:

Udaipur,Rajasthan,India

Comments:

Hi,
My husband was operated first on 1st March 1995 for brain tumour,diagnosing glioma.He received oral chemo & radiotherapy.We were not educated by the doctors who operated him,as a result my daughter was born in 1999. In 2005,my husband was again operated for recurrence of tumour,this time diagnosing GBM,4th stage. His prognosis was 6 months to two years.He received Chemo & RT again.The only side effect of this last surgery is weak left side,he worked very well and travelled widely on work.On repeated MRI,a large size tumour was found,which was alarming for me.Because all along I never let him know what disease he had and what prognosis doctor had given me.I consulted some more neurosurgeons/physicians in the country and came to know about another advanced test than MRI to detect the intensity of cancerous cells in the brain. When we undertook that test,to my utter amazement,the report said there was no recurrence as well as no trace of GBM or any cancerous cell in the brain.
Now,since last 2 months his condition is deteriorating.With new MRI stating the same size of tumourand also stating that the radiation necrosis can not be ruled out.According to doctors,the seizures and deterioration could be because of residual lesion in the brain. I don't know yet,what should be done next? Should I go for the Pet Scan again ? My reason for sharing this in detail is,maybe there are some people with simliar history and maybe I would be able to help some people in distress,specially the immediate family of the patient who are equally traumatic and pained.

169 - June 10, 2008 12:49 am

Name:

Pablo Meehan

Location:

Bay Area CA

Comments:

My heart goes out to all of you. This disease hurts the family and the patient in different but still painful ways.

Our mother was diagnosed with GBM in June 07 and soon had the surgery thereafter.

Thanks to Dr Prados at UCSF Medical center, he referred us to Dr. Vickstrom in Fairfield. Our mom went through the chemo and temedur but found the best results with Avastin a drug from Genentech. It's a clinical trial 2 drug but shows amazing results whereas the tumors have reduced in size.

One day I hope to see all cancers be rid of this earth. May God help John Kanzius with his research.

168 - June 9, 2008 1:49 pm

Name:

Alex McCraw

Location:

Saginaw, TX

Comments:

Nacy
My wife has a GBM and we live in Saginaw, Texas. MD Anderson has some very good doctors. If you have any questions just send an email. I ried to email you but your email address did not work.

167 - June 8, 2008 6:27 pm

Name:

Nancy Williams

Location:

Nacogdoches, Texas

Comments:

My brother, age 57 was diagnosed with GBM stage 4 on Tuesday, June 3, 2008. He underwent craniotomy that same evening. Needless to say we are devastated. We are awaiting appointment at M D Anderson to investigate treatment. Plans at this time are radiation, and Temadur. Please accept my condolences for your loss, we would appreciate any info, and also prayers for my brother and our family as we travel this road.

166 - June 3, 2008 9:35 am

Name:

Marla Appling

Location:

Versailles, KY

Comments:

My brother (age 54)was diagnosed with GBM over 3 years ago, underwent the brain surgery to remove it and was doing so good for the past 3 years. A couple months ago he started getting numb in his legs and thought perhaps he was just a pinched nerve. Well, it wasn't. He has the same GBM in his spinal cord now and they cannot operate. He starts with radiation and chemo next week. Without a miracle he only has a few months. We are believing for a miracle since 3 years surviving a GBM in the brain was a miracle why not another?! One really neat thing that happened was it turned his life around when first diagnosed 3 years ago. He stopped smoking cigs and another natural herb(!) and is serving God with all his capacity. He is ready to go now if that is what happens. Through this all he has kept the faith and has always said he is a survivor and he will LIVE....I truly believe that is what has gotten him so far. His wife has been wonderful thoughout all of the trials of this disease. She has been doing all the research, keeps their lives organized and really put up with some crazy stuff from him right after his surgery. I am not looking forward to the next few months but if he can be strong and positive, it's the least I can do.
God is good and He is good to us ALL the time!
God's blessings to all of you who have and are going through the experience of this horrible cancer.

165 - June 2, 2008 7:36 am

Name:

Clay Gough

Location:

Indianapolis, IN

Comments:

Hello and God Bless you. We have walked the same road. My Mom, Pauline was diagnosed with a GBM in September 2002. She died on July 24 2004 at the age of 68. Ted Kennedy's sickness brought back a lot of memories as I note he has the "moon face" now indicative of treatment with steroids. Me and my sister took care of my Mom during her illness. I wish I could remember less of those moments when she was sick and more of when she was healthy- someday maybe. I hope you have recovered well enough? Take care, and again God Bless.

164 - May 26, 2008 11:26 pm

Name:

Cyndi V.

Location:

Montara, CA

Comments:

I just came across this website this evening. My thoughts are with all of you. My father passed away a week after his 74th birthday in June, 2004 of a glioblastoma. He was diagnosed at the end of April that same year, and his tumor progressed quickly. It was located on his brain stem, and fortunately, he suffered no pain the whole time. Not a day passes that I don't think about him. So often I want to pick up the phone and tell him something, and then I realize that he is no longer here. He's appeared a few times in my dreams looking happy and well. It's been devastating for all of us in the family. We miss him terribly. I know what you are going through, and it's so difficult. Take care, and know that there are others out there too feeling your pain.

163 - May 20, 2008 6:44 pm

Name:

Jan

Location:

Doylestown, PA

Comments:

Thank you for sharing your family's story with us. I am a hospice nurse and was just researching on the net when I came across your site. Not only a tribute to your dad but reading the posts that others have shared regarding their own journey is truly inspiring. Thank you for reaching out. I truly believe that our lives, when they touch another can and do shape who we become and are to others hence changing us both forever. Blessings to you and your lovely family.

162 - May 20, 2008 2:05 pm

Name:

Rochelle Owens

Location:

Matteson, IL 60443

Comments:

Hi.
Thank you for sharing your story about Stan. I can personally say, "I know exactly what you all went through." My father, Ben Owens, passed on October 3, 2007 from the exact same brain tumor. As I wws reading about Stan's story, it was like reading about my dad's story. My dad was diagnosed at the age of 49 with a 'mass' on his brain (he had a MRI done). He suffered with terrible headaches for a maybe few weeks or less. At first he thought it was because of the 'heat' that summer or where he worked. He worked as a steel worker for 28 years. Unfortunately,it was worst than he thought. Even with the headaches he really didn't tell us about them. I remember he slept all the time. I guess wishing it would go away. Anyway, the Nuero removed as much as he could (August 18, 2006, I believe) The doctor stated that it was a messy' tumor and sharwd with my dad that it was malignant. He went through radiation and chemo as well. He even visited the Cancer Research Center of America in Okalahoma for a 2nd opinion. At least there they gave him more hope. Anyway my dad struggeled a little bit, but he kept pushing and fighting to live. He even tried a another kind of treatment, Temodar (a pill). He finally started going down in May 2007, a week after Mother's Day. The tumor had come back aggressively and he had to undergo a 2nd major brain surgery in June 2007. The doctor's gave him up. He was admitted into hospice for almost a week, until he came back around and started talking again. He did talk and eat aqain, but he never walked after the 2nd surgery. He was also having major seizures too. We finally brought him home July 14, 2007 and cared for him until he passed October 3, 2007. He passed at the age of 51. Now my family are almost at a year of his passging and we miss him "greatly' and honestly it sometimes hard to believe that he is gone, but all I can say is God is Good and we are making it each day. Thank you again for sharing your story. Now I know that other families that have dealt with this and it's very difficult thing to see a loved one endure. It does feel good to talk about it. It helps me with the hearling process. God bless you all.

161 - May 16, 2008 3:06 am

Name:

wayne saunders

Location:

gordo,al

Comments:

I HAVE RECENTLY RECEIVED THE SAME DIAGNOSIS. PROGNOSIS SAME.MY HEART GOES OUT TO YOU AND YOURS. I TRULY UNDERSTAND.

160 - May 8, 2008 12:36 pm

Name:

Jeff Benater

Location:

Cape Town South Africa

Comments:

My wife Liz was diagnosed with GBM grade 4 on 11 May last year 2007,she had brain surgery, they removed as much of the tumor as they could, this was followed by chemo and radio therapy, on her MRI scan approx 5 months after the treatments -- there was no sign of the tumour.She was taking 2000mg of eppilum a day which had an extremely toxic effect, she stopped for 1 week with a dramatic improvement -the neurosurgeon put her back on 1000 mg P/D- he said just to prevent fits or seizures =any one with a similar story

159 - May 6, 2008 8:58 pm

Name:

Jerry H

Location:

Comments:

Just wanted to say that I lost my wife to a GBM May 16, 2007. I will say a prayer for Stan. Someday they will find
a cure for this cancer.

158 - May 4, 2008 5:26 pm

Name:

carol gould

Location:

hants england

Comments:

hello, ive just lost my mum to a gmb, finding it very difficult to understand how these tumours can go undetected for so long, within a couple of weeks of diagnosis my mum was gone we were not told by the medical staff that it would be so quick if we had then we would have taken her home & cared for her ourselves. we were restricted to seeing our mum for three hours a day for which i cannot forgive the north hants hospital for. no one seemed to explain fully what was goin on & its only through web sites like yours that ive come to understand exactly what my mum had so for that i thankyou from the bottom of my heart xx i dont think i will ever come to terms with what has happend but to share my thoughts is a great help my sister & i talk to each other every day & ask questions to which we need answers strange maybe but it might help to get our thoughts together. mum was moved to our local hospital at alton the staff there are second to num. well my thoughts are with you & thankyou for your website its comforting to know there are people out there who know how im feeling thankyou again carol xx

157 - April 17, 2008 5:03 pm

Name:

Corbert Chaisson

Location:

Thibodaux, Louisiana

Comments:

Just surfin to gather info, my father-in-law just had surgery for tumor.

156 - April 8, 2008 4:40 pm

Name:

jane gould

Location:

england uk

Comments:

hi ive just lost my mum 2nd april 2008 she was only diagnoised 2 weeks ago sadly she died but didnt suffer god im going to miss her dnt really believe she has gone how can some one go so quickly 2 weeks

155 - April 8, 2008 2:51 pm

Name:

Alex

Location:

Saginaw, tx

Comments:

This looks like a good web page for those suffering with a GBM. http://www.yasg.com/indexframes.html
Alex.

154 - April 2, 2008 7:44 pm

Name:

Linda VonOhlen

Location:

Comments:

To Live and have lived and keep on living through fond memory is the greatest blessing of Life. Thank you for sharing your story as it is an echo and message that sounds to others who will walk a similar path.

153 - March 13, 2008 11:22 am

Name:

Alex McCraw

Location:

Saginaw, TX

Comments:

My wife started a clincal trial(CP-11 and Avistan) in Aug. 07. In the first 8 weeks there was a marked reduction in the size of the tumor. We have now gone a total of 24 weeks with no growth.

152 - March 12, 2008 10:59 pm

Name:

Lulu Pahuriray

Location:

las vegas, nv

Comments:

I feel your pain. My condolences to you and your family. My brother is dying from this deadly disease. He was a brilliant doctor, internal medicine when he was diagnosed in July, 2006.
In Jan of this year, his doctors told him that all medical options have been exhausted and has 3 months to live. We are still hoping for a miracle.

151 - March 10, 2008 4:14 pm

Name:

John C.

Location:

Revere, MA

Comments:

My wife passed peacefully on Sunday March 2, 2008. after three months of hospice care at home. Five monthds after the diagnosis of GBM IV.

My prayers and best thoughts to the families, caregivers and patients that have been diagnosed with this condition.

150 - February 21, 2008 9:10 pm

Name:

Sharon Buffington

Location:

ellijay, georgia

Comments:

I just found your web site while researching this terrible disease. My husband was just diagnosed 3 weeks ago--he is only 52. I weep for your loss---and mine too.
Sincerely,
Mrs. Vance Buffington